Support & Advocacy

Click Here for a Listing of all support groups -------------------- Aarskog Syndrome Achondroplasia Acoustic Neuroma Attention Deficit Disorder/Attention Deficit Hyperactive Addiction Issues-Persons with Disabilities Adoption Issues and Disability Adrenoleukodystrophy Adults With DD-Health Aging With Developmental Disabilities Aicardi Syndrome AIDS/HIV Albinism Allergies Alzheimer’s Disease Americans With Disabilities Act Amniotic Band Syndrome Amputation Amytrophic Lateral Sclerosis Angelman Syndrome Anticardiolipin Syndrome Antley-Bixler Syndrome Anxiety Disorders in Children Apert Syndrome Aphasia Apraxia Arnold-Chiari Syndrome Arthritis Arythrogryposis Asperger Syndrome Asthma Ataxia Atopic Dermatitis Autism Baller-Gerold Syndrome Batten’s Disease Beckwith-Wiedemann Syndrome Behavior Behavior and Education Bell’s Palsy Benign Rolandic Epilepsy Bi-Polar Disorder Bloom’s Syndrome Brain Tumors C.H.A.R.G.E. Syndrome CACH Syndrome Cancer Caregivers Carpal-Tunnel Syndrome Carpenter’s Syndrome Central Auditory Processing Disorder Cephalic Disorders Cerebellum-Development and Disorders Cerebral Palsy Cerebro-Oculo-Fascio- Skeletal Syndrome Charcot Marie Tooth Syndrome Childhood Disintegrative Disorder Chromosome 04 Disorders Chromosome 09 Disorders Chromosome 18 Disorders Chromosome 22 Disorders Chromosome Abnormalities Chronic Dizziness Chronic Fatigue Syndrome Chronic Illness Citrullinemia Cleft Lip/Cleft Palate Cockayne Syndrome Coffin-Lowry Syndrome Coffin-Siris Syndrome Cohen Syndrome Conduct Disorder Congenital Adrenal Hypoplasia Congenital Heart Anomalies Congenital Hypothyroidism Congenital Myotonic Dystrophy Congenital Syphillis Constipation Cornelia de Lange Syndrome Cortical Visual Impairment Craniosynostosis Cri du Chat Syndrome Crohn’s Disease Crouzon Syndrome Cushing’s Syndrome Cystic Fibrosis Cystinosis Cytomegalovirus Dandy-Walker Syndrome De Morsier Syndrome Deaf/Blind Individuals Deaf/Hard Of Hearing and Education Deafness/Hearing Loss Degenerative Disc Disease Degenerative Joint Disease Depression in Children Dermatomyositis Developmental Disabilities Developmental Milestones Diabetes DiGeorge Syndrome Disability and Violence Disability Etiquette Divorce and Disability Down Syndrome Dual Diagnosis Duane Syndrome Dubowitz Syndrome Dysarthria Dysautonomia Dyscalculia Dysgraphia Dyslexia Dyspraxia-Developmental Dystonia Eating Disorders Ectodermal Dysplasia Ehlers-Danlos Syndrome Elective/Selective Mutism Emotional Disturbance Employment Encopresis Epilepsy Erb-Duchesne Palsy Evans Syndrome Facial Difference Fathers of Children With Developmental Disabilities Fetal Alcohol Syndrome Fetal Drug Syndrome FG Syndrome Fibromyalgia Fibular Hemimelia Fragile X Syndrome Freeman-Sheldon Syndrome Galactosemia Gastrosephageal Reflux Disease Gaucher’s Disease Genetic Conditions Glycogen Storage Disease Goldenhar Syndrome Grand Mal Seizures Grief/Bereavement Guillain-Barre Syndrome H.E.L.L.P. Syndrome Hallerman-Streiff Syndrome Heart Disease Hemimegalencephaly Hemiplegia Hemochromatosis Hemophila Hepatitis Types A, B, and C Hereditary Hemorrhagic Telangiectasia Hirschsprungs Disease Histiocytosis Holoprosencephaly Holt-Oram Syndrome Homocystinuria Horner’s Syndrome HSD Deficiency Hunter’s Syndrome Huntington’s Disease Hurler’s Syndrome Hydrocephalus Hypercholestrolemia Hyperlipidemia Hypochondroplasia Hypoglycemia Hypoplastic Left Heart/Ventricle Hypotonia Ichthyosis Immune Deficiency Impulse Control Disorder Incontinence Incontinentia Pigmenti Intermittent Explosive Disorder Intraventricular Hemorrhage Jacobsen Syndrome Creutzfeld-Jakob Disease Johanson-Blizzard Syndrome Juvenile Diabetes Juvenile Rheumatoid Arthritis Kabuki Syndrome Kawasaki Syndrome Kernicterus Ketotic Hypoglycemia Kidney Disorders Kidney Renal Tubular Acidosis Klippel-Trenaunay Syndrome Landau-Kleffner Syndrome Langer-Giedion Syndrome Language Disorders Larsen Syndrome Laurence-Moon-Bardet-Biedl Syndrome Learning Disabilities Leber’s Congenital Amaurosis Leigh’s Disease Lennox-Gastaut Syndrome Leprosy (Hanson’s Disease) Leukemia Leukodystrophy Limb Differences Lissencephaly Liver Disorders Lowe’s Syndrome Lupus Lyme Disease Lymphangiectasia Lymphedemia M.E.R.R.F. Syndrome Macular Disease Malignant Hyperthermia Maple Syrup Urine Disease Marfan Syndrome McCune-Albright Syndrome Medically Fragile Megalencephaly Meliodiosis Meningitis Menkes Syndrome Mental Illness and Education Mental Retardation Metabolic Methylmalonic Acidemia Microcephaly Mitochondrial Disease Moebius Syndrome Mononucleosis Mucolipidosis Disorders Mucopolysaccharide Disorders Multiple Sclerosis Muscular Dystrophy Myasthenia Gravis Myeloproliferative Syndrome Myoclonus Myositis Myotonic Dystrophy Narcolepsy Near Drowning Neo-Mul-Soy Syndrome Neurodevelopmental Disorder Neurofibromatosis Neurologic Disease Neuro-Metabolic Disease Niemann-Pick Disease Non Verbal Learning Disorder Noonan Syndrome Obsessive-Compulsive Disorder Ohtahara Syndrome Opitz Syndrome Optic Albinism Optic Nerve Hypoplasia Organic Acidemia Osgood-Schlatter Disease Osteogenesis Imperfecta Oxalosis and Hyperoxaluria Paget’s Disease Pallister-Killian Syndrome Panhypotuitarism Paralysis Parkinson’s Disease Pelizaeus-Merzbacher Disease Pendred Syndrome Periodic Paralysis Peripheral Neuropathy Pervasive Developmental Disorders Pfeiffer Syndrome Phenylketunuria Pica Pierre Robin Syndrome Poland Syndrome Polio/Post Polio Polycythemia Polymyositis Polyposis Porencephaly Porphyria Port Wine Stain Post Traumatic Stress Disorder Potter Sequence Prader-Willi Syndrome Premature Infants Progeria Proteus Syndrome Pseudoxanthoma Elasticum Psoriasis Purine-Based Metabolic Disorders Reactive Attachment Disorder Reflex Symphathetic Dystrophy Retinoblastoma Retinopathy of Prematurity Rett Syndrome Reye’s Syndrome Rickets Roberts SC Phocolemia Syndrome Rumination Syndrome Russell-Silver Syndrome Saethre-Chotzen Syndrome Sanfilippo Syndrome Scalpuoperoneal Syndrome Schizencephaly Schizoaffective Disorders Schizophrenia Scleroderma Scoliosis Seckel Syndrome Seizure Disorder Self-Determination Self-Esteem Self-Injurious Behavior Sensory Integration Sex Chromosome Anomalies Sexual Abuse and People with Disabilities Sexuality Shaken Baby Syndrome Siblings Sickle Cell Disease Sleep Disorders Smith-Lemli-Opitz Syndrome Smith-Magenis Syndrome Soft Tissue Sarcoma Sotos Syndrome Spina Bifida Spinal Cord Injury Spinal Muscular Atrophy Stargardt’s Disease Stickler (Marshall) Syndrome Stroke Sturge-Weber Syndrome Speech/Language Therapy Sudden Infant Death Syndrome (SIDS) Sydenham’s Chorea T.A.R. Syndrome T.O. R.C.H. Syndrome Tardive Dyskenesia Tay-Sachs Disease Terminal Illness Tetralogy of Fallot Thalissima Tongue Thrust Torticollis Tourette Syndrome Transient Ischemia Transition in the Individual Education Plan Process Transition to Adult Life Transition to High School Transition to Middle School Transition: Preschool to Elementary Translocation of the Greater Vessels Transportation Traumatic Brain Injury Travel Training Treacher-Collins Syndrome Trisomy 10q Trisomy 13 Trisomy 18 Trisomy 08 Trisomy 09 Tube Feeding Tuberous Sclerosis Turner Syndrome Twin to Twin Transfusion Syndrome Urine Organic Acid Urticaria Pigmentoa Usher Syndrome V.A.T.E.R./V.A.C.T.E.R.L. Velo-Cardio-Facial Syndrome Ventricular Septal Defect Vestibular Disorder Visual Impairment Von Willibrand Disease Waardenburg Syndrome Wagner Syndrome Watson Syndrome Weaver’s Syndrome Wegener’s Granulomatosis West Syndrome William’s Syndrome Wilson’s Disease Wolf-Hirschhorn Syndrome Women and Disability Xeroderma Pigmentosum XX X Syndrome in Females Zellweger Syndrome Chondroplasia Punctata Hallervorden-Spatz Syndrome Intestinal Pseudo-Obstruction Kleinfelter Syndrome Lesch/Nyhan Syndrome Polycystic Kidney Disease Rubenstein Taybi Syndrome Spondyloepiphyseal Dysplasia Congenita